Comments on Arranging Shoes: Whipper Snapper Smart Folks with Cognitive Challen...

Wow, BK, thanks for the great video! I watched it ...

2010-06-08T20:45:27.878-07:00

Wow, BK,
thanks for the great video! I watched it 2X.

The second time around, I was probing around looking for that Full Screen Option, which I found (do the remains of my manners hold me "to" attention; I look away from the big, Close-Up, face much less often while the regular-size, far-off lady, doesn't grip my concentration so fully).

I also found a button to Show Subtitles, and the close-up lady, plus the clear voice, plus the words spelled out in front of me, managed to keep me focused through the whole thing!

I have no idea when I was last able to follow anything that full of details and ideas.

I never had a stroke, but with my MS it was like I was waking up halfway through a Twilight Zone episode; my legs were not where I expected them to be, or functioning like they had, or like the legs I saw around me, walking in an hypnotic sway of left-right, left-right.

They were all doing it, and I felt so inadequate to the job. How would I ever be able to master the mental and physical effort to walk all the away around the corner to get my whiskey - it would never happen.

That is when I realized that the new brain was as much a failure as the new body, in fact, I was STUPID.

I thought I would stop by and tell you I bought Ji...

2009-12-22T07:03:57.373-08:00

I thought I would stop by and tell you I bought Jill Taylor's book. It is very good and thank you!

I, too, found this 18 minute video very illuminati...

2009-12-13T10:13:36.370-08:00

I, too, found this 18 minute video very illuminating. Thanks for posting and writing about this woman's experience as well as your own.

Hey Azale - yep the normal aging remarks pushes th...

2009-12-10T19:16:08.612-08:00

Hey Azale - yep the normal aging remarks pushes the button for most of us. And, what you've gone through, well, I could see it pushing more than a button! Yeah, I explain it less and less in person -- maybe that's what the blog fulfills for me. And, I was going to comment that I like movies in Dutch/Flemish too but alas you're running a commentless blog. Hmm.

HM - I'm glad that the video resonated so much with you and that you forwarded it on!

I came back to tell you that I posted your link (a...

2009-12-09T05:18:45.239-08:00

I came back to tell you that I posted your link (and gave you credit) on my blog.

This video really helped me a lot and thanks a lot! =) I plan to get her book now.

It is NOT arguable whether or not you were ever wh...

2009-12-08T22:11:47.908-08:00

It is NOT arguable whether or not you were ever whipper snapper smart. You was, is, and shall be.

This post resonated with my experience. Your comment about "No, it's not normal aging" had a special zing. I might be talking to someone about how things are different post-surgery/treatment... telling them about the challenges like reading long numbers, forgetting what words mean and how they are spelled, and not being able to focus. Almost invariably, people's response is along the lines of "Oh, I do that all the time" or "Sucks getting old, doesn't it?" With most people I smile and nod. With people I really care about I try to explain. Sometimes it seems they actually get it; more often they smile and nod.

Herrad - Thanks again for the award and good to &q...

2009-12-08T08:30:30.787-08:00

Herrad - Thanks again for the award and good to "see" you here!

Diane - Ah another JBT fan. Interesting observation -- after your accident you still functioned well but knew it wasn't the same. Part of it is very subjective and hard to explain.

HM - I've still been cringing a bit about this post -- not sure why. So, am glad to hear it made you feel better.

This is amazing and makes me feel better for whate...

2009-12-08T05:33:05.103-08:00

This is amazing and makes me feel better for whatever reason. I am glad you posted this.

I own her book and heard her speech, amazing stuff...

2009-12-07T21:20:07.672-08:00

I own her book and heard her speech, amazing stuff. After I got hit by the vehicle at age 10, my brain never worked as good. I still got all As in school, skipped many days, so nobody saw a change but me. It was huge to me. The speed was gone. I was changed forever. Once in awhile the speed comes back, but rarer and rarer. I just go with the flow. I know what I once was. Some will never know that feeling. What would I have done differently? Probably nothing since I wanted to be an actress. But I get ya. It is a real loss that is not vanity, a loss.

Hi Donna, Came by to say hello. Love, Herrad

2009-12-05T09:28:08.239-08:00

Hi Donna,
Came by to say hello.
Love,
Herrad

Hi Donna, Please come by my blog and pick up your ...

2009-12-03T10:16:45.071-08:00

Hi Donna,
Please come by my blog and pick up your award.
Love,
Herrad

Judy - Thanks for the link to the post about CCSVI...

2009-12-02T21:07:07.229-08:00

Judy - Thanks for the link to the post about CCSVI. I've been following the CCSVI stuff for quite some time now and spoke to the surgeon at Stanford doing the procedure. I think there's something there. Looking forward to seeing your finished "smart" haiku!

Zoom - Isn't that an amazing video? When I was closer to my brain surgery and feeling so vulnerable, I'd watch it and cry every time.

Jinx - Yeah, I knew you were a JBT fan. I've gained a lot from your sharing about the neurocog testing. I don't have the swiss cheese memory holes but other things. I'm seeing a new MS Neurologist tommorrow and going to get more recommendations for testers.

Good to see you all here!

Dr. Taylor is one of my heroes. Judy, LOVE the h...

2009-12-02T20:22:36.788-08:00

Dr. Taylor is one of my heroes.

Judy, LOVE the haiku!

Donna, Dr. Taylor's video is amazing. What an ...

2009-12-02T11:38:40.689-08:00

Donna, Dr. Taylor's video is amazing. What an incredible way to share an incredible experience! Thank you.

I am not kidding, Donna, when I say that yesterday...

2009-12-02T03:53:08.598-08:00

I am not kidding, Donna, when I say that yesterday I started working on a new haiku and its first verse is:

Am I a dummy?
I am smarter than I act.
I simply forget.

That's as far as I've gotten. We'll see if I finish it and publish it down the road.

If you haven't already, check this out by fellow MS blogger Enjoying the Ride:

http://www.enjoyingtheride.com/2009/12/new-theory-about-root-cause-of-ms.html

Judy